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Nick

Hello all,

Nick went through many ups and down since I last posted here, and on Tuesday the 26th of October, he finally passed on.

After his third and most recent diagnosis with non-Hodgkins Lymphoma (NHL), he told me he would like this site to continue in some form, no matter what happened with him.  I don't know what direction it will take, but we'll see what unfolds.

For starters, I'm sure he'd want folks to remember - he had something to say about living with cancer quite apart from the disease outcome.  He would not want anyone to come to Laughing with Cancer, see that he was not cured and think, "Hmmph.  Well, that didn't work."

On the contrary, it worked beautifuly.  You see, his purpose for laughing with cancer was not to cure his cancer, although he was aware a healthy attitude couldn't hurt in that regard.  The purpose, as I understand it, was to be as alive and as present as possible for whatever time he had, with or without a cure.

He certainly accomplished that.

With excellent care, modern treatment, and a lot of love, he survived NHL and in many ways thrived for seven years.  He turned up with Parkinson's along the way, but that didn't slow him down much either.  He packed more living and loving into those seven years than many people do in a lifetime.

So, where shall we go from here?  Please post your comments, ideas, or questions, and we'll see where it takes us!

Love,

Julia

Hi Julia...

Thank you for that!

What amazing memories we have which come flooding back each day in glorious colour, of many days of sunshine and laughter and very often champagne. I first met Nick about 40 years ago when he was a golden boy with cornsilk hair and the latest boots... and went on knowing him as he studied and practised what he preached, inspired & encouraged everyone else, developed and reinvented himself. 

Along the way he introduced me to Dave and with John was a witness at our wedding, prodded me into my current career, and remained the nearest thing to a brother a chap could possibly be. He had good things to say about so many people... we feel as if we know some of you! In spite of feeling as if we've somehow been emptied, in spite of the terrible sadness, Nick is still present with us, his movements, expressions, voice, a golden man who will never grow older. Thank you Nick for being you, a one off.

We have recordings by the way Julia and are glad the video will still be there on the website for when we can bear to watch it again in the future... 

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Improving

Hello all,

You're welcome, Anj.  And hello Dave, it's good to see you on here!

Nick's stem cell transplant indicators are still right on track, in spite of a few other bumps along the way.  He continues to receive excellent care, and is doing better and better all the time.  I'll post more news before long, if Nick doesn't beat me to it.

 

 

Some great news and some irritating news

Hi, I'm Nick's friend, Julia.  I help him with his website so I'm able to post some news for you. 

First of all, the great news is Nick's stem cell transplant appears to be going very well.  The irritating news is he had a reaction to some of his other medications, which has left him a bit under the weather.   He's on the mend now, so we can look forward to an update from him once he's rested up.

Stay tuned!

Sweats and shivers

Well what a day I had yesterday, I had a bad reaction to one of the drugs one minute I was soaking the sheets  with sweat the next I  was curled up shivering covered in blankets then I got delirious during the night talking to people who weren't actually. which was very strange. Have I become part of the Twilight Zone was I in another dimensions. I'm going to stop writing now as I keep nodding off. The nap didn't last long before more meds were administered my world is turning into a giant pharmacy.

Busy, busy, busy

Phew I'm exhausted its been so busy today. Observations six thirty a.m. Followed by flushing the line in my chest all this was accompanied with having to swallow copious amount of pills. Then the suggestion was made that I might like to shower which I dutifully did.

Home from home from home.

Well here I am back in hospital and the great news is I have my old room back again, which I am delighted about. I still know some of the staff and there are new ones as well and they are great. I had a Hickman line put in today which is bloody sore at the moment. When I got to the operating room there was some amazing jazz/swing and blues playing and I half expected for the doctor and nursing staff to break out into a dance routine and it turned out it was all on the doctors ipod.

Hey its the weekend

Hey its the weekend and the last one I shall have for a while where I am able do as I please. That is if every thing goes according to plan and I am admitted on Tuesday, in a strange kind of way I am getting a little excited about it. It will be a new adventure and I like adventures. Most of all I look forward to a time of remission but I have also considered the possibility that it might re-occur again and I will deal with that if and when it happens.

A Dark Night

Another dark night of the soul, tonight the implications of what waits me finally dawned on me. The thought of being in one room for 6-9 weeks seemed overwhelming. Sometimes acceptance is a hard lesson to learn, even as I attempt to stay present and in the moment. My glands are coming up again I wish there was another way of doing this but I don’t have the faith or conviction to stop treatment and do it naturally. I am eating and meditating and practising different Breathing exercises to help me relax.

Has time got faster?

With a heading like that you will probably be thinking I have some deep philosophy to share with you this week that will lead to world peace and enlightenment. Sadly I don't have anything profound to say, but something curious happened this week, I started craving meat.  What makes it stranger is I have been a veggie for about six years.

Meals on Wheels

Meals on Wheels took on a new meaning last night when I had to cancel going to dinner as I just couldn't face the journey. Not wanting to be deprived of my company they loaded everything up in their  car and low and behold meals on wheels with South of France suntans appeared. They had with them a delicious veggie Lasagne, an extraordinary salad plus a wonderful selection of berries for pudding. We had a fun evening and when I got too tired due to Friday's chemo I excused myself and went to bed while the other guests entertained themselves.

We're almost there.

Spent  today at hospital having tests done and talking with doctors. It looks like I shall be going in on the 16th of August. This means that after having some chemo that the donor stem cells will be put in my body on the 23rd. I'm in a bit of an overload state at the moment as i was given so much information some good, some bad and some awful. But I'm in a good space in my head and I am ready to do it! The great thing is they have wifi so I will be able to write and keep in contact with everyone.